Umami, Amines and PNH (Part 1)

It seems so unfair, over the last weeks PNH symptoms have flared up again and I have had to go back to the drawing board to try and pinpoint what may have triggered it off.  I could put it down to all the stress of moving during the most frantic season of the year, things not working while the world was on holiday not to mention trying to stop the flu that’s trying to grip the country in a head lock trying to grip me too. I could, but I need to cover all bases here especially taking into consideration that it has also waxed and waned during this time.

So as part of my move into our new home I invested in some new bits and pieces to ramp up my healthy lifestyle gig.  A pressure cooker to start making my bone broth in, some gelatin to heal the gut and liquid stevia so that I could wean myself off the sugar. I was good for the first week or so and then BANG!!!! Irritability, spasms, aches, tears, tantrums – OK I also cheated because when I feel bad I also eat rubbish – which I know has to stop – God help me please.  But I have learnt enough about my body to be able to pick up what is and isn’t affecting me and begin to read how. Something was different and I prayed that it wouldn’t be the gelatine. I wouldn’t mind giving up the stevia, but the gelatin – I could use that to make all kind of wonderful things – plus it replaced the eggs which I can’t eat at the moment plus it was making my hair and nails grow. Continue reading Umami, Amines and PNH (Part 1)

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Thoughts on the Causes of Peripheral Nerve Hyperexcitability

This is another update on my health journey, especially for those diagnosed with Cramp Fasciculation Syndrome/Peripheral Nerve Hyperexcitability.  I hope it can add something worthwhile to your own healing journey.

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Last week was my second appointment with the neurologist and her insights coupled with everything I have learnt so far in the natural/alternative health field has made me think more deeply about the nature of this disease. Continue reading Thoughts on the Causes of Peripheral Nerve Hyperexcitability

Dealing with Peripheral Nerve Hyperexcitability (CFS, BFS, Isaacs)

I really need to offload that’s why I’m here, I need a place to process what I have been going through without any expectations.  I’m mainly writing this for me but if it helps anyone else out there that’s great.

I have so many emotions going around me at the moment, I’m grateful and thankful because on May the 6th I finally received a diagnosis of actually having an autoimmune illness after nearly 6 years of being looked down on by doctors, people in the church and family members.  To be honest I feel justified and vindicated, I thank God for this small victory. Continue reading Dealing with Peripheral Nerve Hyperexcitability (CFS, BFS, Isaacs)