Since July 2011, I have found that many people stumble across this website because they have typed in a term related to Cramp fasciculation or Peripheral Nerve Hyperexcitability Syndrome. The Cramp Fasciculation Syndrome post has been visited nearly 500 times (last checked 5th November 2014) so I know that there are sufferers out there who are searching high and low for treatments or anything that can be used to manage their symptoms (latest CFS/PNH posts here).
My heart truly goes out to you because I too have scoured the forums. No matter the illness, it seems that people fall into two camps: those who are afraid, depressed or reconciled to living with the disorder and those who are not. I’m in the camp of people who believes that what has a start must have an end, and I stand firmly in the belief that CFS is not incurable.
To be honest, I noticed symptoms of CFS from a young age but it would come and go, it wasn’t until 2008, that it hit in full force and never went away. Nevertheless, my faith in a loving and just Father, God and Saviour has given me the hope, courage and strength to make it through day by day and the faith that my complete healing is just around the corner.
Tips on Overcoming Peripheral Nerve Hyperexcitability
- Drs are not the Experts – it took me 6 years to get a diagnosis and be thoroughly tested for antbodies and EMG. Much of this time was spent fighting the system because they didn’t believe that there was anything wrong with me. During this time I guessed that the illness was autoimmune because stress and illness made it worse but it was nice to finally have it confirmed. Be prepared to fight to make yourself heard.
- Take a natural approach – the good side of being rejected by medicine was that it enabled me to seek out natural ways of managing my health. A change in diet plus increased faith and positivity helped to reduce stress and build resilience allowing my body to rest and begin to recuperate. I mostly operated on about 7 out of 10 through a combination faith medicine, diet and natural supplements/herbs and there have been days when I have had no symptoms at all and felt truly healthy and alive.
- Deal with underlying issues and traumas – Periperhal Nerve Hyperexcitability is a desease of both the nervous and immune system most especially the autonomic nervous system which regulates the stress response. This means that any unresolved traumas and experiences put excess strain on both your immune and nervous systems causing them to go into over drive. I have found that journalling, counselling, singing, dancing, writing, meditation and anything creative and expressive allows me to let go and process much of what I would otherwise hold on to (Type C and D personality traits). I have also learnt how to be more self-expressive and assertive which is also very important for soul-healing and nurturing.
- Be Kind to Yourself – Illness is always difficult for you and those around you, it is so easy to want to give up, to be afraid, get frustrated, angry, disillusioned, depressed or bitter. The key is to accept these emotions, embrace how you feel in the moment but don’t allow yourself to get stuck there. You are not perfect, and God doesn’t expect you to be, all you can do is try your best whilst accepting that at times your best will be much less than what you would desire it to be. Healing is like a marathon not a sprint, it requires pace and perseverence to reach your end goal. If there are people around you who are judgemental or condemnatory distance yourself from them, or if you need time to be alone go for it. Create an environment both internally and externally that promotes healing.
- Drop the God Complex – even if you don’t believe in God, read this anyway. Generally people who fall ill with autoimmune conditions tend to have negative personality types e.g. Type A’s tend to have a God complex because they feel they need to do everything by themselves. Learn to let go and trust in the One who created you and the universe to bring you to a place of total healing and well-being. Really difficult to hand over those control reins I know, but you need to understand that you are potentially jeapordising your healing by trying to control everything around you. I can’t begin to tell you how much peace I have experienced by learning to surrender my Life to God through His Son, Yahushua (Jesus) – yes, I’m a Christian.
If you have gained some insight on how to move forward from these 5 tips then you might want to check out my wholeness ministry here.
Do you have any questions or comments, please contact me or leave a comment below and I’ll get back to you.